HAILEY NICOLE JACKSON

Hailey was born in Nov. 2000. She weighed 2 pounds and 4 oz. She stayed in the NICU for 5 1/2 months before coming home. Hailey has a rare chromosome disorder called Trisomy 9 Mosaic Syndrome. She has Chronic Lung Disease from being on the ventilator for a long period of time and doesn't have a pituitary gland. We have to give her a hormone shot every night to take the place of that gland. We heard about Godstock through a newspaper article advertising for an upcoming event. Godstock had a benefit for Hailey and another child in 2001. This was her first public appearance other than doctor visits, and the affection and kindness shown to her and our family was amazing to us. This organization has given me precious time with Hailey. By helping with the monthly bills, I am able to stay at home right now and care for her. My husband and I thank you for helping us all.
- The Jackson Family

An Update from the Jackson Family: Hey everyone just wanted to keep you updated on Hailey's room project. We are wrapping up the raffle tickets and the drawing for the 3 winners will be Tues the 2nd of Aug. This week we will start a Home Interior Fundraiser and will be selling candles and so much of the money goes to Hailey, in Sept. we will be having a bar-b-que and in Nov. a chicken dinner more details for those as soon as we get them. We really appreciate all of your help and concerns with trying to help us build Hailey's room, this is a lot more than I anticipated it to be but you all are helping this dream come true thank you all so much!!!!!!!!!!!!!
- Amy Jackson

 

 

 

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